Living Well With Dementia: A National Strategy

The Spiral Health CIC Dementia Manifesto: 2014-2017

‘Living Well With Dementia: A National Strategy’ is a 5 year governmental response to increased prevalence rates of people living with, or being diagnosed with, dementia. It is now thought that about 700,000 people have dementia in the UK and the numbers are increasing year on year. Most people with dementia are over 65 but at least 15,000 younger people also have this condition. One of the key messages in the strategy is the need for better education and training for professionals and the wider public. It is estimated that less than half of those with dementia have a formal diagnosis and when people see specialist services it is often too late in their illness, so the opportunities to improve the quality of their lives are reduced.

The Strategy has three key themes:

  1. Ensure better knowledge about dementia and remove the stigma.
  2. Ensure early diagnosis, support and treatment for people with dementia and their family and carers.
  3. Develop services to meet changing needs better.

Our promise

At Spiral Health we recognise the importance of this national strategy and the impact that the increasing numbers of people who have dementia have on their own lives and on the lives of those around them. We have developed our own response and outcomes to all 17 key areas and made them into a Spiral Health Promise in the form of this manifesto document, which we aim to achieve over the next three years. But is this enough?  The Government’s strategy is five years old: it needs a review. England is falling behind Scotland in diagnosis rates. Only real determination and commitment will bring about change and that is why, alongside our promise, we have set ourselves actual targets to achieve.

  National ObjectiveWhat the National strategy aims to achieve National OutcomesWhat this means to people with dementia and their carers Spiral Promise What and how Spiral Health intends to undertake locally
1  Raise awareness of dementia and encourage people to seek help    The public and professionals will be more aware of dementia and will understand dementia better. This will:·         help remove the stigma of dementia ·         help people understand the benefits of early diagnosis and care ·         encourage the prevention of dementia

·         Reduce other people’s fear and misunderstanding of people with dementia.

 ü  100 per cent of Spiral Health Staff will receive Dementia Awareness training and become Dementia Friends ü  Information about Dementia and where to gain support locally will be made available at all Spiral Health Units
2  Good-quality, early diagnosis, support and treatment for people with dementia and their carers, explained in a sensitive way  All people with dementia will have access to care that gives them: ·         an early, high-quality specialist assessment ·         an accurate diagnosis which is explained in a sensitive way to the person with dementia and their carers ·         Treatment, care and support as needed after the diagnosis.

·         Local services must be able to see all new cases of people who may have dementia in their area promptly.

 ü  100 per cent of patients who are admitted to a Spiral Health unit will be offered a dementia screening assessment. Advice and information will be provided. Any outcome will be forwarded to the patient’s GP on Discharge.
3  Good-quality information for people with dementia and their carers  People with dementia and their carers will be given good-quality information about dementia and services:• at diagnosis • During their care.  ü  Up to date information regarding dementia and local services will be available at each of the Spiral Health units.
4  Easy access to care, support and advice after diagnosis  People with dementia and their carers will be able to see a dementia adviser who will help them throughout their care to find the right: ·         information ·         care ·         support

·         Advice.

 ü  Spiral Health will actively engage with local (and national) dementia support services and groups. To ensure that patients gain easy and appropriate access to such services for on-going support and advice.
5  Develop structured peer support and learning networks  People with dementia and their carers will be able to: ·         get support from local people with experience of dementia ·         Take an active role in developing local services.    ü  In addition to all staff being Dementia Friends, each of our sites will have a Dementia Champion, who will work with local dementia support groups to focus on developing dementia friendly sites and support groups.
6  Improve community personal support services for people living at home  There will be a range of flexible services to support people with dementia living at home and their carers.  Services will consider the needs and wishes of people with dementia and their carers.  ü  We will make a commitment that 100 per cent of our patients who have dementia or symptoms of it are referred to appropriate community based services to ensure that support is continued upon discharge from a Spiral Health unit.  
7  Implement the New Deal for Carers  Carers will: • have an assessment of their needs • get better support • be able to have good-quality short breaks from caring.  ü  We commit to partnering with a local Carers Organisation to ensure that all carers are supported as individuals, have access to carers assessments and are invited to carer specific events, held or co-ordinated by a dedicated carers worker, which we will host at our sites.
8  Improve the quality of care for people with dementia in general hospitals  This way people with dementia will get better care in hospital: ·         it will be clear who is responsible for dementia in general hospitals and what their responsibilities are ·         They will work closely with specialist older people’s mental health teams.  ü  Spiral Health will identify a named senior nurse within the organisation to lead upon dementia across the whole organisation to ensure that best practice is embedded
9  Improve Intermediate Care for people with dementia   There will be more care for people with dementia who need help to stay at home  ü  Spiral Health will develop a new person centred pathway for patients entering our Intermediate care units.
10  Consider how housing support, housing-related services, technology and telecare can help support people with dementia and their carers  Services will:• consider the needs of people with dementia and their carers when planning housing and housing services• try to help people to live in their own homes for longer.  ü  As a part of the rehabilitation process our occupational therapists will support patients to return to their own home environment where appropriate to do so, this will include the use of assistive technology where available.
11  Improve the quality of care for people with dementia in care homes  Services will work to ensure:•better care for people with dementia in care homes•clear responsibility for dementia in care homes•a clear description of how people will be cared for

•visits from specialist mental health teams

•better checking of care homes.

 ü  Whilst Spiral does not operate or manage any Care Home we will ensure that any patient entering a care home following discharge from one of our units takes with them a personal profile explaining how best to support them  and detailing the aspects of their life that are important to them.   
12  Improve end of life care for people with dementia  People with dementia and their carers will be involved in planning end of life care. Services will consider people with dementia when planning local end of life services.  ü  Any patients who are identified as palliative or end of life and receiving support from Spiral Health will be fully informed and involved in their care; carers will also be involved during this time.
13  An informed and effective workforce for people with dementia  All health and social care staff who work with people with dementia will: • have the right skills to give thebest care•get the right training

•get support to keep learning more about dementia.

 ü  100 per cent of staff will receive dementia awareness training and will become Dementia Friendsü  There will be a senior nurse identified as the organisation’s lead for dementiaü  Each of our sites will have a Dementia Champion
14  A joint commissioning strategy for dementia  Health and social care services will work together to develop systems to: • identify the needs of people with dementia and their carers • Best meet these needs. There is guidance in the Strategy to help services to do this.  ü  Spiral Health will work with local commissioners and other providers of health & social care to support the local commissioning strategy.
15  Improve assessment and regulation of health and care services and of how systems are working  There will be better checks on care homes and other services to make sure people with dementia get the best Possible care.  ü  We will monitor and audit the care we offer and provide to patients with dementia to ensure we are providing the best possible care against national clinical guidance and standards
16  Provide a clear picture of research about the causes and possible future treatments of dementia  People will be able to get information from research about dementia. We will do lots of things to identify gaps in the research information and do more research to fill the gaps.  ü  Spiral Health will support and participate in any national or local audit or research focusing on patients with dementia within intermediate care settings
17  Effective national and regional support for local services to help them develop and carry out theStrategy  The Government will give advice and support to local services to help them carry out the Strategy. There will be more good-quality information to help develop better services for people with dementia.  ü  We will access and if appropriate feed into national and local support services, modelling best practice and guidance in order to deliver the best possible care for patients with dementia.